Prayers and well-wishes continued to pour in all day Monday for legendary Lady Vols Head Coach Emeritus Pat Summitt.

Her family announced Sunday that she was not doing well and asked for prayers and privacy.

The Lady Vols legend has fought a battle with Alzheimer's disease since 2011. She stepped down as the team's head coach in 2012.

Summitt was diagnosed with early onset dementia, specifically Alzheimer's disease, five years ago, while in her late 50s.

As any family impacted by Alzheimer's disease knows, that journey is a difficult one.

"Slowly, through time, you just lose your memory, lose yourself," said Katie Mork.

She's a volunteer at Alzheimer's Tennessee, who lost her father to the disease in 1991.

"When we first noticed it, he was getting forgetful and he would write things on his hands, you know, for memory jogs," Mork said, adding that later - when he'd go to pay a bill, "he couldn't work out which bill or how to pay."

Support groups helped Mork's mother, who was Mork's father's primary caregiver, but it's still difficult to watch as your loved one forgets who you are.

"I think that's the beauty of support groups: If you know kind of what's coming down the pike, it's not so shocking," Mork said, "but the first couple of times when someone forgets who you are or-- for a long time he thought I was Mother."

Legendary Lady Vols head coach Pat Summitt's career was cut short by early onset Alzheimer's. That's when someone shows symptoms of the disease before the age of 65, according to Alzheimer's Tennessee.

"Our thoughts and prayers right now are with the Summitt family because this, obviously, is a very hard journey to live with this disease," Alzheimer's Tennessee's Director of Communication and Development Kay Watson said.

The disease progresses at different rates for different patients, she added.

"For some people, this journey lasts a few years. For some people, this journey can last 20 years," Watson said.

"It's such a looming problem and everyone is getting touched by it," Mork said.

Her father died in his mid-80s, some 15 years after his diagnosis.

"Caregiver, take care of yourself. Self-care is huge," Mork said.

"We want people to know they're not alone," Watson said. "Whether they're Pat Summitt or whether they're at home, trying to care for their loved one."

She said Alzheimer's Tennessee wants families to know resources are available.

"We want to make sure families understand that there are things that you can do about this disease," Watson said.

Making its way through the US Legislature right now is a spending bill that includes a funding increase for Alzheimer's research.

There are now 17 drugs in advanced clinical trials. However, currently the FDA has approved only a handful of medications for the treatment of Alzheimer's in the last couple of decades.